KidFam!

An AMAZING night with my kidney family! Many converged on Palm Desert for Coachella, so Emory flew down and we drove out this morning. Our first time meeting the spectacular Bree, the altruistic donor who.started the chain that saved my life and Heather’s. Very fun and emotional time with these lovely folks who truly are family.

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deepBreath

Biopsy report: The kidney is VERY happy. (Thanks Glenn for such a great one!) No signs of rejection. No abnormal scarring.  One year is a big milestone that I am thankful for. (Last biopsy will be at the 2-year mark.)

SO thankful to God for His grace and sustenance; to Stacy for her undying love and advocacy; my family for helping me feel normal (well, Atkinson normal) through this; my other kidney chain family members; and to our church, my work, and all our friends for your massive support and prayers.

Now, excuse me while I fully embrace this wonderful life I’ve been gifted.

ONE-YEAR KIDNEYVERSARY!

That’s right, one year ago today I received my new kidney that saved my life. How can it feel like 10 years ago AND yesterday?? I’m much more emotional than I thought I’d be – have been for a few days. It’s been a long 3-year journey – autoimmune disease diagnosis, treatment, kidney failure, dialysis, transplant, rejection, treatment, recovery. But those are just steps along the way.

Here are two much more important elements of my journey:

People – my Angel Wife, Stacy (without whom I would not be alive), my children, extended family, friends, church, work, medical professionals, fellow patients – and, of course, my partners in our amazing Kidney Chain: Amy, who’s death from cystic fibrosis inspired cousin Breelynn Horn to be an altruistic kidney donor; Heather Kantor who received Breelyn’s kidney; Emory Fuqua who donated her kidney on my behalf to Laurie Dietrichson Troxell in Colorado; and my brother-from-another-mother, Glenn Croc Millar, who donated on behalf of Heather, and gave me his kidney. (I know that’s confusing – here’s a better explanation)

Impact – people have been asking me a legitimate question: Am I glad 2016 is almost over? First, I’m typically not one to regret. What happens happens – it’s our response to it that matters. Second, every step along this journey has become part of my DNA. It has imprinted the experiences on my spirit. It has fundamentally changed me in so many ways. My perspective on life and the future has been transformed. God has worked each step for my good, who is more concerned with my inside (WHO I am) rather than all the outside parts working right.

All signs point to my new kidney doing great. I’ll have my one-year biopsy next week to confirm. Recovery from the rejection treatments and my body just getting used to this new normal has been a sloooow process. I’ve only started to feel significant improvements in my strength and stability over the last 5 weeks, which made for a much happier Christmas.

We are so thankful to God for His grace and mercy through this, and to all our friends around the world for their support and prayers.

A new Christmas

Last month I told Stacy that since I haven’t been able to celebrate Christmas very well that last 3 years, I WILL be wringing every ounce out of it this year. I’ve drug her to parties, receptions, and festivities almost every day this month. It is filling my Christmas tank – my fave season of the year.

I even got to pick the Christmas tree theme – Peppermint! Love my wife’s glorious trees. Makes me emotional each time I look at it.

So grateful for the gift of life.

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9-month check-up

A good day. 9-month check-up at Scripps Green. All thumbs up. I tell people that the kidney is doing great and I’m getting there. Still struggle with fatigue and other side effects, but much less. Celebrating with my lovely bride surrounded by the beauty of La Jolla and dinner at Brockton Villa.

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Skin Cancer

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Can’t see it very well but…that’s blistering from a date with a flame thrower today.

Went to the dermatologist today – as all transplant patients do – and was told that with the meds I take I’m at a 60% higher risk for squamous cell carcinoma – skin cancer. 

Then he inspected every inch of my body and found multiple pre-cancerous spots on my head.

So he used liquid nitrogen to burn the top layer of skin off all those spots. Not pleasant. So now they blister, then scab, then a new layer of skin grows back.

I have to sunscreen my face every day before going out for the rest of my life.

But, as my son Chris, said, “Yeah doesn’t sound fun at all, but you’re still alive and we couldn’t be more thankful for God for it!!”

Perspective.

Surprise!

What a special surprise today…got this amazing, handmade pillow from Carol Tummarello in Texas. Now understand that I have never met Carol. She is my daughter-in-law Sarah’s Grandma sister. What an angel, and an inspiring message. Hugz Carol…someday in person!

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The Spoon Theory

No other resource was more helpful in assisting my friends and family to understand what it was like to be me while battling chronic kidney disease.

If you deal with chronic illness, please read this, then forward it to those closest to you. They will be enlightened and you will be relieved when they don’t pressure you as much. Many times my folks or kids would ask how my spoons were doing.

This is from the website But You Don’t Look Sick. You can also download this article in PDF format or get it translated in Spanish, Hebrew, and French.

Read it in English:

The Spoon Theory by Christine Miserandino