Next step

I got a call late yesterday that Kaiser approved a 5-day infusion treatment of prednisone that starts Monday. It’ll be 500mg a day. Oh boy.

But I have great hope that this will do the job and pound my immune system into submission and reduce the inflammation in the kidney.

Plus, I’m feeling much better, just by knowing next steps. -whew-

In the meantime, I will take in Good Friday and Easter with new meaning and inspiration. HE IS RISEN!!

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Clear as mud.

So, the biopsy showed significant improvement in the overall kidney. Inflammation reduced enough that they would have patted me on the head and sent me on my way. However, they found a new, small incidence of inflammation on the lining of one of the blood vessels in the kidney. Studies show that if it is not treated it reduces the amount of time the new kidney will be good.

The inflammation is a result of my immune system attacking the kidney, so they consider it possible signs of rejection. Thus, it looks like they will put me through another set of higher prednisone infusions for a week and do a follow-up biopsy to see if the inflammation has decreased. If that doesn’t work they will do the much more aggressive ATG infusions in the hospital to knock this out.

The prednisone treatment is like bringing a bazooka to a gunfight. The ATG is like bringing a nuclear bomb to a gunfight. All this has to be approved by Kaiser, since we are at the end of the 3 month approved treatment cycle with Scripps.

All that to say, we don’t know for sure what is happening next. Still clear as mud.

I can’t lie, all this hit me pretty hard yesterday, when I heard the initial news. Felt surrounded by a dark, dark, cloud. Talked to my pastor, worked in the yard, and listened to worship music – good therapy. Better therapy is remembering Jesus’ words, “Come to me, all of you who are weary and carry heavy burdens, and I will give you rest.” Not always easy to live inside those words, but I’m trying.

I’ll let you know what the next steps are. Stay tuned…

I’m sorry.

I want to apologize to trees everywhere for my kidney transplant. This is only what I’ve received from Kaiser SO FAR listing charges from Scripps (head spinning) and what amount they’ll allow. And now I’m starting to get the bills from Scripps. Our postman actually told us we needed to get a larger mailbox.

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Biopsy results

Just talked to my doctor about the biopsy results. He confirmed that the kidney has less inflammation but is not out of the woods yet; also my immune system is attacking the transplanted artery, which shows inflammation in the lining. He will bring the results to their weekly committee meeting of surgeons and nephrologists Monday to get a consensus on treatment. He said they may suggest a very aggressive treatment with ATG infusions. This will require me to check in to the hospital for a couple days, and recover at home a couple days.

He said in the past they didn’t concern themselves with the artery, but have found it dramatically reduces long-term graft survival if not treated. So I will know more probably Tuesday morning.

Job help

My angel kidney donor, Emmoree KF, was just laid off from her job – one of 50 people. She is not just a sacrificial, amazing person, but sharp as a tack and great at what she does: Events and event marketing. She lives in the Bay Area, so if anyone up there knows of any opportunities, please pass it on to her or me and I’ll get it to her. Thanks!

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Biopsy Update

12788680_10153394874893016_1092241755_oNo I am NOT pregnant. The photo is actually of my certified, pre-owned kidney (brought to you by Glenn Millar; made possible by Emory Fuqua). I took this from the ultrasound used at Monday’s biopsy.

Was informed that the biopsy did not get a sufficient sample, so we’re doing it again! Oh boy. Apparently the muscles in that area kept the 14-inch needle from getting close to get deeper in the kidney. (Definitely the first time I’ve been accused of having too much muscle.)

So we’re doing it again next Thursday. Bummed about delaying the diagnosis of the state of the kidney. But Stacy reminded me that maybe it needed an extra week to get better. Yeah, I’ll go with that.

I remember teaching a Bible study in my 20’s talking about how Rest/Trust/Wait are the hardest things to do in my spiritual walk. Certainly no easier 30 years later. So let’s just say I’m getting to exercise those muscles through this journey.

Overall, definitely feeling relief from the effects from the higher doses of prednisone last month. Still on daily low dose, and that comes with its own effects, but not as bad. Finally having the energy to walk more and work in the yard has been good for me.

Thanks to all for your love and support!