Things are looking up! My new and improved overnight dialysis machine and I have gotten more used to each other. Not quite as much pain and sleeping better. Still have to do one manual dialysis session in the afternoon, but hoping to stop that next month, and roll it back into the overnight regimen.
The best thing is that I’m starting to feel slow improvements as a result of the dialysis taking the place of my failed kidneys. I’m having more good days then bad now. I don’t feel as weak or shaky. I’ve been explaining it like this…if I was 100% before all this started, I probably got down to 10% the first few months of this year, and now feeling at about 40-50% these days. VERY happy with the progress.
Stacy and I even tried a short get-away last weekend, hauling all my manual paraphernalia with us. All went well, and we got some needed relaxation and renewal in Julian, San Diego’s quaint mountain town.
This Monday is our first appointment with my transplant team at Scripps Green Hospital in La Jolla. We’ll spend all day with various team members, talking through the whole process and each step. We’ll get an idea of the timeline and what to tell those who have offered to donate a kidney for me. Very excited to get this part of the solution moving forward.
And thanks to friend Heather Spears Kallus for using parts of my story in a wonderful blog post called Power in the Name: