I’m not gonna lie, this last week has been pretty hellish. There were many bumps in the road with my first week of dialysis – unexpected side effects, changes to my prescription, etc. made it pretty rough on me and especially Stacy, since she hates to see me suffer. My nurse made some adjustments over the weekend and I’m doing much better. All in all, we were in a pretty dark place for a few days.
BUT…it’s Friday and Sunday’s comin’! Going to church yesterday was just what the Great Physician ordered. Experienced my own personal resurrection. Feeling better fueled to get through the next coupla weeks.
Then, while in church, my good buddy Kenton messaged me from Israel with this photo. It’s a piece of paper with my name written in Hebrew and a prayer for me written on the back. He folded it up and put it in the Wailing Wall in Jerusalem on Easter. It’s good to be loved.
The light at the end of the tunnel is once I’m allowed to move on from the manual method of dialysis I’ve been doing to the automated machine that works overnight while I’m asleep, life will get much better. And from talking to many others on this method, life will slowly start to normalize, as it brings some new life back to my body.
Parallel to the dialysis journey is the transplant journey…last week my nephrologist told me I’ve been approved by Kaiser for a transplant. Now they will hand over my case to Scripps Green, which will do the actual transplant. But, because they are a different medical system, they also have to approve me. They will take the medical tests I’ve done with Kaiser, but there will be interviews and such that I’ll need to do in person. Once approved, I’ll be assigned a Transplant Team, who will walk me through the process. After all that, they will give the thumbs up to put the call out for potential donors. I’m guessing all this will take at least 9-12 months. But we’ll see.
So…thank you all for the incredible support we’ve received – prayers, encouragement, cards, Facebook messages, meals, etc. You just can’t know the full extent of how that buoys us in the roughest of waters.